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What does “children with albinism” mean?

A little over a week ago, I explained that I will be using my next album to raise funds for the Buhangija School in Tanzania.  I got a great response from friends and family about the project, but I also got a lot of questions.  I realize there is a lot of education that needs to occur, both for me and for you.  So let’s get the education process started!

Children with Albinism and the term “Albino”

When I use the term “children with albinism”  I generally get a puzzled look.  The term refers to children who are “albino,” however, the term “albino” is not politically correct and is somewhat insensitive.  Using the term “albino” identifies a person by their disorder, which is bad.  When you use the term “children with albinism (cwa)” or “person with albinism (pwa)” you are identifying them as a person who deals with a disorder, which is far more respectable.  I would encourage you to begin using these terms rather than the standard “albino.”

What is Albinism?

Albinism is a rare, non-contagious, genetically inherited condition that results in the lack of pigmentation in the hair, skin, and eyes, causing vulnerability to the sun and bright light.  Almost all PWAs are visually impaired due to abnormal development of the retina and nerve connections between the eye and brain.

 

Now you have a basic understanding of what albinism is, and what I mean when I say “children with albinism.”   Keep checking back, as I will be explaining more about the plight of PWA’s in Tanzania, and the Buhangija School.

 

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